Family Early Help
Working Well Together With Parents with Learning Difficulties
Advocacy and Parenting Peer Support
The Elfrida Society in Islington (different organisation to Elfrida Camden in Kentish Town) offer advocacy and parent peer support for parents with learning difficulties or disabilities.
Family Early Help can spot purchase independent advocacy if the family worker and manager think this would be a valuable addition to the scaffolding network, and would support the parent and family to move closer to their goals.
The Elfrida Society also have parent peer support groups for parents with learning difficulties or disabilities. The groups aim to support parents to gain awareness of self-advocacy and build confidence to speak up for themselves and to support each other, particularly around parenting.
Find out more here
https://www.elfrida.com/Parents_services.html
General Resources to Support Your Work with Parents with Learning Difficulties or Disabilities
The Working Together with Parents Network at University of Bristol has some fantastic resources and tools to support your work with parents with learning difficulties or disabilities. Find out more here
http://www.bristol.ac.uk/sps/wtpn/
This report from University of Bristol on successful professional practice when working with parents with learning difficulties also has lots of ideas and tips to support your practice
you can also find a good practice guide from the Working Together with Parents Network here
Here is the slide pack from the webinar we had with Professor Danielle Turney and Beth Tarleton, which contains ideas for communication, information, parental skills development, and ways to adapt your practice. This includes the 6 T's approach to supporting parents with learning difficulties and disabilities
Camden Learning Disability Service (CLDS)
We have good friends in CLDS, so if you're feeling stuck or need to have a think together with someone about the best possible help and support for a parent with learning difficulties or disabilities, you can contact Catherine Schrieber, Illrette Cummings or Victoria Grimwood (on Outlook) or you can call ext 3737 (0207 974 3737) and ask to speak to either the health or social work duty manager.
Camden Special Parents Forum
The Camden Special Parents Forum is a peer support group for families with children with disabilities. The Forum is provided by KIDS and offers a regular programme of activities and support. You can find information about their autumn programme here
CYPDS
The Children and Young People with Disabilities Service produces a regular newsletter, and this one contains a lot of useful information (produced 10 July 2020) for families that include a child or young person with a disability. Includes accessible toilets open in Camden, information about short breaks, direct payments and using DP for buying PPE, and ideas for things to do during the summer.
Support for Children with Disabilities
Here is a link to information about support for children with disabilities, including Mosaic (the integrated service for the borough’s disabled children, young people and their families based at Kentish Town Health Centre)
https://www.camden.gov.uk/services-children-disability?inheritRedirect=true
And here is a link to Camden's Local Offer for families that include a person with a disability
http://cindex.camden.gov.uk/kb5/camden/cd/localoffer.page?localofferchannel=0
And a link to activities for children with disabilities, including short breaks
https://www.camden.gov.uk/services-children-disability#ppgf
SENDIASS (Special Educational Needs and Disabilities Information, Advice and Support Service)
Camden SENDIASS provides impartial information, advice and support to children, young people aged 16-25 and parents/carers of children with special educational needs and disabilities. This includes children with or without a diagnosis, and with or without an EHC Plan.
You can refer to SENDIASS using this form
and here is an information leaflet about SENDIASS
or you can contact Julie Bidgway or Ozge Acar (on Outlook)
KIDS
KIDS provide a range of support for families that include a child with a disability, including keyworking, sibling groups, home learning and short breaks. Providing support throughout COVID
https://www.kids.org.uk/pages/search.aspx?q=camden
Support for Adults with a Long-term Condition or Disability
If you need some specific advice about supporting an adult with a long-term condition or a disability, our friends in Camden Learning Disability Service and Adult Social Care are really happy to help. Please contact Catherine Schreiber or Philip Vaughan in CLDS, and Anna Derham or Chris Stone in Adult Social Care.
National Autistic Society
Here is a link to COVID information, advice and resources from the National Autistic Society
https://www.autism.org.uk/services/helplines/coronavirus.aspx
and lots of helpful information for families with autistic people and their families here
https://www.autism.org.uk/services/helplines/coronavirus/resources/helpful-resources.aspx
British Heart Foundation (BHF)
There is a specific section on Coronavirus (link is external) covering:
- Heart conditions and coronavirus (link is external)
- Coronavirus and your health (link is external)
- Emotional wellbeing (link is external)
- Exercise (link is external)
- Healthy eating (link is external)
Cancer Research UK (CRUK)
Have a page dedicated to Coronavirus (link is external) to help answer questions and concerns for those with cancer and with a range of useful links.
Mencap
Mencap have a page with easy to read advice on Coronavirus (link is external).
They also have a free helpline available 9 am to 3pm Monday to Friday. This offers advice and support for people with a learning disability, and their families and carers. They also have an online contact form which can be used as an alternative to the helpline.
- Helpline no - 0808 808 1111
- Email - [email protected] (link sends e-mail)
- Online form - completing this online form (link is external)
More information is available on the website (link is external)
Scope
Scope's Coronavirus page (link is external) includes a range of information and advice including:
- benefits and coronavirus (link is external)
- support with Council Tax during coronavirus (link is external)
- getting food and essentials (link is external)
- Cerebral Palsy and coronavirus (link is external)
- self-isolating when you are a carer (link is external)
- employee rights and coronavirus (link is external)
- support with council tax during coronavirus (link is external)
- self-employment support during coronavirus (link is external)
- prescriptions and accessing health (link is external)
- help with coronavirus guidelines and risk (link is external)
Royal Association for Deaf People
Royal Association for Deaf People’s (RAD’s) desk-based advice support in Camden continues to be a remote service. RAD support is available via an accessible remote service including webcam, facetime, text and where safe, welfare visits for elderly and vulnerable clients in line with current (and up to date) guidance. RAD also provide information on employment, education and training.
The days and times of their service remain the same: Tuesdays, Wednesdays and Thursdays, 10.00am – 4.00pm. Please feel free to visit RAD’s website www.royaldeaf.org.uk or contact Nicole Campbell at [email protected].
RNIB (Royal National Institute for the Blind)
Please contact the Royal National Institute for the Blind (RNIB) Helpline on 0303 123 9999 for the information and advice to help you with your specific needs during the COVID-19 crisis.
Replacement Batteries for Hearing Aids or Cochlear Implants
If deaf children and adults need Hearing Aid batteries or Cochlear Implant batteries but are down to their last packet and cannot get another packet before they will run out, CSSEF will post them directly to your house.
Please email [email protected]